Hello People,
I just got home from hospital today and am exhausted already. Yesterday they started me on strong oral antibiotics while I finished the IV course and it was so strong...I had a bad day of throwing up and feeling awful...so they changed my oral again to another strong one which I think makes me feel a little lousey but not as bad.
I still have some fluid on my left lung, but the infection is clearing up. I have not had a temperature for at least 3 days. I have felt a little better and my appetite is slowly..very slowly coming back...I have been seeing the dietition and have some nutritious things that I took home to help me get back on top of things. I am on the same pain protocol that I was at hospital and we take my temperature regularly...if anything changes we have to go back in pronto...we cannot have me being sick like I was last week when I nearly died...it was serious.
Isaac is really excited to have me home. We have to remind him that I need to have rests but he is excited and fell asleep very early in his own bed for the first time in 2 weeks....knowing that mummy is safe at home and that the next week Alan will have off to take care of us. We are looking into other home help to help me recover as well.
I have to take 12 weeks off of work. I still have that surgery coming up and need to get better for that....I know it will be a long recovery. I was very upset that my counts were knocked out. I never had bad haemagobin but that was knocked out too so I am anaemic and tired. The Goji Juice I take does help though.
I wanted to thank you all for praying for me and leaving messages of support..it has been greatly needed for Alan as well as myself. Please keep praying...this journey of recovery is long and pneumonia is not good for an FA patient...please keep offering your support. I realised how many people care for our family and I am blessed.
Well I am tired and am going to rest. Thank you all....please keep checking for updates. I will be having weekly follow ups with my doctor and blood tests to check my marrow is recovering and if I need help with transfusions. Thanks ....I will fight on.
I love you all.
Charisse
Friday, August 31, 2007
Tuesday, August 28, 2007
Update From Hospital again
Hi Guys,
I am still in hospital and have felt very emotional when Isaac comes to visit me. He perks up when he sees me and gets excited saying "mummy you are better" and I have to explain that I am almlost better but that I have an infection here in the chest that is not better yet; and mummmy can not come home yet. He gets a big bottom lip and tears swell up and I feel so bad. He has been having some other things that show his worry and anxiety over his mummma.
So today I had a liver / abdominal ultrasound. All came back good but the ultrasound showed still fluid on my lung and so ther antibiotic (IV) must continue to at least Friday and then all will be re-evaluated and then I may be able to go home with a PICC-line in or have just oral antibiotics with weekly follow ups and blood tests....counts have been knocked really low and feel scared about it...right now bloods are taken daily or every second day. I was told today to expect my recovery of my counts and pneumonia to be between 6-12 weeks and that it will be a while...we had to cancel our holdiay...i am heaps disappointed.
It was nice to have mum here today and Darren and Angela visit tonight and Liesl my sister take care of Isaac today. Thanks to our friends and families, and nanny/close friend. Who have been supporting us so much. Densie (nanna)... I think about you a lot and are hoping you are really having a fun time overseas..Love you.
I know that there is a purpose for everything, and God will work all things out for good some how... so keep trusting in Him... I will write more when I am less tired.
Love charisse.
I am still in hospital and have felt very emotional when Isaac comes to visit me. He perks up when he sees me and gets excited saying "mummy you are better" and I have to explain that I am almlost better but that I have an infection here in the chest that is not better yet; and mummmy can not come home yet. He gets a big bottom lip and tears swell up and I feel so bad. He has been having some other things that show his worry and anxiety over his mummma.
So today I had a liver / abdominal ultrasound. All came back good but the ultrasound showed still fluid on my lung and so ther antibiotic (IV) must continue to at least Friday and then all will be re-evaluated and then I may be able to go home with a PICC-line in or have just oral antibiotics with weekly follow ups and blood tests....counts have been knocked really low and feel scared about it...right now bloods are taken daily or every second day. I was told today to expect my recovery of my counts and pneumonia to be between 6-12 weeks and that it will be a while...we had to cancel our holdiay...i am heaps disappointed.
It was nice to have mum here today and Darren and Angela visit tonight and Liesl my sister take care of Isaac today. Thanks to our friends and families, and nanny/close friend. Who have been supporting us so much. Densie (nanna)... I think about you a lot and are hoping you are really having a fun time overseas..Love you.
I know that there is a purpose for everything, and God will work all things out for good some how... so keep trusting in Him... I will write more when I am less tired.
Love charisse.
Monday, August 27, 2007
Still In hospital...plodding long
Hello All, Sorry for the late update.
I was supposed to come home on Saturday but the pneumonia flared up. I changed from IV antibiotics to oral at the end of last week, but started to get worse again over the weekend, so they now have me back on a new course of IV antibiotics.
Unfortunately, this means my holiday is cancelled this week, and means i'll be in hospital for the rest of this week with the option to have home-nursing with a PICC line rather than stay in hospital the whole time.
I'm still a little jaundice (yellow eyes), and ankles are swallen (maybe due to my liver being affected, plus all the fluids i've been given). I'm having a liver ultrasound tomorrow, and have given a urin sample to check the status of my kidneys.
i have not enjoyed my week--there's been things which have made me anxious, and i miss Isaac so much.
Thanks to my mum, dad, liesl, tim, darren & angela who have looked after isaac and taken care of our cats while we've been in hospital.
I still feel very lethargic and my energy levels are quite low. My counts (CBC, LFT) have all been disturbed by the pneumonia--the CBC knocked out, and will take a little time to recover.
Until next time... i'll update again soon. (with alan transcribing)
Love charisse.
xx
I was supposed to come home on Saturday but the pneumonia flared up. I changed from IV antibiotics to oral at the end of last week, but started to get worse again over the weekend, so they now have me back on a new course of IV antibiotics.
Unfortunately, this means my holiday is cancelled this week, and means i'll be in hospital for the rest of this week with the option to have home-nursing with a PICC line rather than stay in hospital the whole time.
I'm still a little jaundice (yellow eyes), and ankles are swallen (maybe due to my liver being affected, plus all the fluids i've been given). I'm having a liver ultrasound tomorrow, and have given a urin sample to check the status of my kidneys.
i have not enjoyed my week--there's been things which have made me anxious, and i miss Isaac so much.
Thanks to my mum, dad, liesl, tim, darren & angela who have looked after isaac and taken care of our cats while we've been in hospital.
I still feel very lethargic and my energy levels are quite low. My counts (CBC, LFT) have all been disturbed by the pneumonia--the CBC knocked out, and will take a little time to recover.
Until next time... i'll update again soon. (with alan transcribing)
Love charisse.
xx
Wednesday, August 22, 2007
Update From Hospital
Hello all,
It is Charisse here again.
I have moved back from H.D.U (High-dependancy Unit) to the regular haemocology/oncology ward of which I am relieved.
I have felt very scared and traumatised by what has happened and have been crying lots. The pneumonia is heaps clearer and I am up, walking about, eating a little, and drinking more.
I have been doing physio exercises and going well. I also may be having some counselling due to trauma I've experienced while here, and other associated with my brother's death.
My feet are also quite swollen which is due to a lack of protein in my blood due to the infection and not eating as well. I have had an ultrasound on my legs to ensure there is no DVT (deep vein thrombosis). I have been visited by a dietician who is giving me special drinks and an exclusive menu to choose from for meals to help in this area.
I'm not entirely certin when I am going home, but expect sometime by the end of the week.
Thank you to all who have helped out, and those who have been praying.
Love Charisse
xx
It is Charisse here again.
I have moved back from H.D.U (High-dependancy Unit) to the regular haemocology/oncology ward of which I am relieved.
I have felt very scared and traumatised by what has happened and have been crying lots. The pneumonia is heaps clearer and I am up, walking about, eating a little, and drinking more.
I have been doing physio exercises and going well. I also may be having some counselling due to trauma I've experienced while here, and other associated with my brother's death.
My feet are also quite swollen which is due to a lack of protein in my blood due to the infection and not eating as well. I have had an ultrasound on my legs to ensure there is no DVT (deep vein thrombosis). I have been visited by a dietician who is giving me special drinks and an exclusive menu to choose from for meals to help in this area.
I'm not entirely certin when I am going home, but expect sometime by the end of the week.
Thank you to all who have helped out, and those who have been praying.
Love Charisse
xx
Tuesday, August 21, 2007
still in hospital
Hi everybody,
Charisse went in hospital for her ear infection, and has been treated there since Sunday night. During the course of her stay, she started to get quite severe muscle pains around her ribs and back which were aggrivated by an on-going cough from previous weeks sickness.
Throughout Monday night and Tuesday Charisse has been on heavy pain-killers and sedatives to combat the muscle pain and give her some peace. However, during this time another infection started brewing (if not, was always there) and continued to worsen. Last night the doctor came in and checked her over, and diagnosed that she has developed pneumonia in the base of one of her lungs.
She has been catagorised as moderate-severe, primaryly due to the blood complications with Fanconi Anaemia.
She is resting well, and showing signs of improvement, but remains in the high-dependancy unit at the hospital.
She is doing well, showing signs of recovery. Please pray that this continues, and all her other blood-related issues also resolve.
Regards,
Alan (Charisse's husband)
Charisse went in hospital for her ear infection, and has been treated there since Sunday night. During the course of her stay, she started to get quite severe muscle pains around her ribs and back which were aggrivated by an on-going cough from previous weeks sickness.
Throughout Monday night and Tuesday Charisse has been on heavy pain-killers and sedatives to combat the muscle pain and give her some peace. However, during this time another infection started brewing (if not, was always there) and continued to worsen. Last night the doctor came in and checked her over, and diagnosed that she has developed pneumonia in the base of one of her lungs.
She has been catagorised as moderate-severe, primaryly due to the blood complications with Fanconi Anaemia.
She is resting well, and showing signs of improvement, but remains in the high-dependancy unit at the hospital.
She is doing well, showing signs of recovery. Please pray that this continues, and all her other blood-related issues also resolve.
Regards,
Alan (Charisse's husband)
Saturday, August 18, 2007
hospital
Hi All,
have been very sick with the ear infection. Temps too high last night. Specialist wants me to come in for a couple of days of IV antibiotics...going in today.
Just wanted to let you know.
Love Charisse
have been very sick with the ear infection. Temps too high last night. Specialist wants me to come in for a couple of days of IV antibiotics...going in today.
Just wanted to let you know.
Love Charisse
Friday, August 17, 2007
Ear Infection
Hi Guys,
well the sick saga still continues. Alan is feeling much better but is still lethargic. Isaac is heaps better and seems to have his energy back but his horrible cough remains. In regards to the flu bug I feel much better but still lethargic....then yesterday morning I woke at 0530am with the worst ear ache (left ear) and stiff neck. I could not fall back asleep because of the pain. Went to infusion. Infusion went really well with the new product again and so far I have only had tremors. However, my specialist looked in my ear and he said it was all swollen and red and a nasty infection and all my lymph nodes are up from the ear to under my arm. My face is swollen on that side today and I am really sore. They gave me a big dose of IV fluclox while having infusion and I have an oral antibiotic to continue at home but I have to call if it shows no sign of improving after 48 hours. My neuts have been reasonable at 1000 but my body has taken such a knocking from all the continuous bugs that it is having trouble getting on top of things so they don't want me to be left to sort it out on my own. I have steroid drops for my ear too. I feel miserable.
I was so worried about being recovered for my surgery and prayed Thursday night that God would help it all work out and then Friday morning my gynae rang and said we had to put the surgery off for 3 weeks...all the anaethetists are not going to be there! What a relief. This gives me an extra 3 weeks to recover...and Isaac is too unwell with coughing stuff up to have his surgery this coming Friday. The only other date they offered me that was close was 2 days after my surgery and I couldn't be with him. I think it is not right that I am not with him. So now my surgery is put off an extra 3 weeks, Isaac's can be made for the 21st Sept and I can be with him. He can have extra time to recover from his fluey bug. So this is actually good and working out for us. Praise the Lord.
I am going to go now. Surely this sickness should all be over soon. I am so scared Isaac will get extra sick by sending him back to kindy. He has not had the flu shot this year. Doctors don't often reccomend it for the young ones here....say it is more important for adults and immunosuppressed and elderly. However the flu in Australia has been killing people....it always kills some people. However, it is particularly nasty. I had my flu shot ages ago. However, spoke to Isaac's doctor and he was concerned at how sick Isaac has been and so this week we are getting his flu shot. The flu season is expected to go into October and may be November...summer time this year and so it is not too late and that will protect him more at kindy.....and me. This new regime for kids has been recommended from now on with every year. I actually usually get Isaac immunised but I was slack with it this year. All the preschoolers are getting hit with it. No wonder Isaac can't seem to escape it. I feel bad. I should have done it when I had it. The doctor says it is still worth it.
Ok, gonna go...very sore. Please keep praying for us. We are supposed to be holidaying in the snow in a couple of weeks! This is all so crazy!
Love Charisse
well the sick saga still continues. Alan is feeling much better but is still lethargic. Isaac is heaps better and seems to have his energy back but his horrible cough remains. In regards to the flu bug I feel much better but still lethargic....then yesterday morning I woke at 0530am with the worst ear ache (left ear) and stiff neck. I could not fall back asleep because of the pain. Went to infusion. Infusion went really well with the new product again and so far I have only had tremors. However, my specialist looked in my ear and he said it was all swollen and red and a nasty infection and all my lymph nodes are up from the ear to under my arm. My face is swollen on that side today and I am really sore. They gave me a big dose of IV fluclox while having infusion and I have an oral antibiotic to continue at home but I have to call if it shows no sign of improving after 48 hours. My neuts have been reasonable at 1000 but my body has taken such a knocking from all the continuous bugs that it is having trouble getting on top of things so they don't want me to be left to sort it out on my own. I have steroid drops for my ear too. I feel miserable.
I was so worried about being recovered for my surgery and prayed Thursday night that God would help it all work out and then Friday morning my gynae rang and said we had to put the surgery off for 3 weeks...all the anaethetists are not going to be there! What a relief. This gives me an extra 3 weeks to recover...and Isaac is too unwell with coughing stuff up to have his surgery this coming Friday. The only other date they offered me that was close was 2 days after my surgery and I couldn't be with him. I think it is not right that I am not with him. So now my surgery is put off an extra 3 weeks, Isaac's can be made for the 21st Sept and I can be with him. He can have extra time to recover from his fluey bug. So this is actually good and working out for us. Praise the Lord.
I am going to go now. Surely this sickness should all be over soon. I am so scared Isaac will get extra sick by sending him back to kindy. He has not had the flu shot this year. Doctors don't often reccomend it for the young ones here....say it is more important for adults and immunosuppressed and elderly. However the flu in Australia has been killing people....it always kills some people. However, it is particularly nasty. I had my flu shot ages ago. However, spoke to Isaac's doctor and he was concerned at how sick Isaac has been and so this week we are getting his flu shot. The flu season is expected to go into October and may be November...summer time this year and so it is not too late and that will protect him more at kindy.....and me. This new regime for kids has been recommended from now on with every year. I actually usually get Isaac immunised but I was slack with it this year. All the preschoolers are getting hit with it. No wonder Isaac can't seem to escape it. I feel bad. I should have done it when I had it. The doctor says it is still worth it.
Ok, gonna go...very sore. Please keep praying for us. We are supposed to be holidaying in the snow in a couple of weeks! This is all so crazy!
Love Charisse
Tuesday, August 14, 2007
Still Sick!
Hello All,
update on our family. Please keep praying..we need the prayer.
Well, I mentioned that Isaac was a bit brighter on that Sunday but I came down with the bug....we sent Isaac to preschool on Monday and he came home and crashed! He slept for 3 hours and then he went to bed early at night and he started with the horrible cough again and was washed out and began temperatures again that night. So he has been home, yet again, and still looks washed out. He will be home all week. It is such a horrible bug. I have been really sick with it and went to the GP on Tuesday and am on antibiotics. Felt so overwhelmed by it all that I burst out in tears at the doctors....because by then Alan also came down with it and has had fevers, amazing lethargy, coughs, aches and pains and so on. So mum came on Tuesday and looked after us all and Alan was in bed all day. Alan went to the doctor today and has been put on antibiotics...so Isaac, Alan and I are all on antibiotics and I am still in my Pj's and it is 1.30pm. We are all lazing at home because we are all sick. Isaac still has surgery next Friday. My infusion on Friday...I just pray Isaac is well by the weekend. This has knocked our family unit around and we all have felt like crying...hehe....I suppose that sounds funny...but we have not found it amusing.
So please keep praying for us.
Got to go...I should go have a bath or shower.
Love Charisse
update on our family. Please keep praying..we need the prayer.
Well, I mentioned that Isaac was a bit brighter on that Sunday but I came down with the bug....we sent Isaac to preschool on Monday and he came home and crashed! He slept for 3 hours and then he went to bed early at night and he started with the horrible cough again and was washed out and began temperatures again that night. So he has been home, yet again, and still looks washed out. He will be home all week. It is such a horrible bug. I have been really sick with it and went to the GP on Tuesday and am on antibiotics. Felt so overwhelmed by it all that I burst out in tears at the doctors....because by then Alan also came down with it and has had fevers, amazing lethargy, coughs, aches and pains and so on. So mum came on Tuesday and looked after us all and Alan was in bed all day. Alan went to the doctor today and has been put on antibiotics...so Isaac, Alan and I are all on antibiotics and I am still in my Pj's and it is 1.30pm. We are all lazing at home because we are all sick. Isaac still has surgery next Friday. My infusion on Friday...I just pray Isaac is well by the weekend. This has knocked our family unit around and we all have felt like crying...hehe....I suppose that sounds funny...but we have not found it amusing.
So please keep praying for us.
Got to go...I should go have a bath or shower.
Love Charisse
Sunday, August 12, 2007
Unbelievable! Prayer Please
Well on Thursday night Isaac came down sick with something...a virus and temperatures of about 38 degrees C (about 102 to 103 F) for 3 days! It is something that is going around preschool but I was not feeling impressed that Isaac was yet again sick...not that it was his fault at all...but if Isaac is sick then I usually get it. I nurse him so much while he is sick and because he had temperatures he was grizzly and upset and had no energy and just wanted cuddles...and then he would cough and I would get sprayed in the face because he is crying and everything at the same time. Something you expect as a mother, I know....but not something that we want right now. This family and my parents and sister and neice and parents-in-law and everyone has had these bugs..it has been unbelievable. My Aunty rang from Queensland tonight and she told me that everyone there (a different state) is coming down with this things too and how bad the bugs have been this winter! Well, Isaac woke up this morning quite bright and his temps have gone down...but guess who woke feeling horrible and like the life is sapped out or you? You guessed it! Me the mother! I woke up with a sore throat, coughing my head off and choking, and feeling a bit sweaty and no energy...nose completely blocked..even the medication is not helping that...and my nose just runs...and now it is so sore from blowing it! This is a real pain. However, I am glad Isaac is well and can go back to preschool tomorrow I hope this virus doesn't run rampage throughout my body for weeks...which can happen! Isaac's first full year at preschool and he is building his immunity to bugs so we were warned that he would bring many home which means I will be building my immunity also and catch them all...with a lower immunity I hold on to the virus longer and it really wacks me out. I feel a bit panicked about it all. We really need wholeness in this family. We need protection and lots of prayer. Please pray for us seriously. I have a big surgery in 6 weeks that I MUST be well for...I must be well for it and well to recover for it...this is very important and I ask that you would really seriously pray for me. Isaac has his surgery on the 24th August and he needs to be well for that as well...he needs to be well. Alan has started coughing tonight.....we rebuke it in the Name of Jesus...Alan needs to be well to look after us! And he needs to be well so he can do what he needs to do and I don't like it when he feels yucky. It is not nice for anyone.
I have been spending a lot of time with Jesus and my devotional...not has much as I should....but enough to be knowing where He is taking Isaac, Alan and I in our next step of life...and I know the Devil will want to stop the amazing things God has for us. I would love to call those who pray to pray for our protection against the things that the Devil tries to destroy. I know some people don't believe in this stuff. I know some people don't believe in the Devil and some don't believe Jesus is God.....but I believe Jesus is God and I believe that the Devil will try and oppose any miracle, anything good that Jesus is doing in our family. We have made HUGE decisions to do with our family and we are going ahead and we need protection.
I have had an extraordinary peace about these decisions.
I have some things I want to share with you that have impacted my life the last 3 months. These are some quotes from scripture.
Psalm 18: 30 " As for God, His way Is perfect"
This is an amazing verse. You know you try and do things the way doctors say or the way other human beings say but it is only until you spend time with the Almighty God do you realise that you need to do things His way and only His way and His timing is perfect, his way is perfect. I can say that this is what is happening in my life. The surgery and some other things....increased platelet count...did you know that every Thursday night my church group gets together to pray for healing and increased counts and favour on my life with what I do and success with what I can do and more....God is allowing me to reach out and grab those things that FA people don't think they can have....and giving me courage to do things that are despite transplant. God gives the people who choose transplant, courage to do that because it is His will. God gives me courage to do what is His will in my life...and he has given me extreme peace with it.
If you don't have FA and you are unhappy about your life. I want you to think about something. God's way is perfect....but you need to find His way not yours...and stop fighting to do everything your way and not His....don't be subborn with what you think....don't complain and yell at people about what you hatef doing. If God opens a door in your life for you to have a better thing then acknowledge it and thanks Him and grab it...don't let it go...and don't take it and complain bitterly about it. Families are important to us...children are important....but God is the most important and what He has for your life as an individual is important...I am not saying that doesn't include your kids....it does....one of the most wonderful ministries is being a mum and making sure your child knows you love her or him.....also that is bringing the child up right to not be selfish, to learn to do things on their own amongst the love....but never ever forget what God has for YOU as a person...never forget that you are important to Him and that He has a plan for YOU..........I needed to share this tonight and the right people read it and I hope God speaks from it.
Another verse is Psalm 18:18 " They confronted me in the day of my disaster, but the Lord was my support".
I have felt so confronted by FA, doctors, leukaemia and so on....by the box that we are put in but I will not be boxed. I will do what God wants for me and He is better than any of this....and if that includes taking risks to do what I feel is right...then so be it...but I think God has told me...."remember I am your support"....He is supporting me through what I am doing and I can feel Him lifting me up. I challenge you....do you feel Him lifting you up through your decisions and attitudes? Are you making the right decisions by God....not just convience...I am not talking to just FA families but other people too.......remember that God has a way...and his way is perfect...you cannot do it any other way and feel happy...what God tells you to do....whether you like it or not.....acknowledge it because when you do...the peace that flows!
I am happy with life right now....please pray for protection on our family as do what we believe God wants us to do.....
Love Charisse
I have been spending a lot of time with Jesus and my devotional...not has much as I should....but enough to be knowing where He is taking Isaac, Alan and I in our next step of life...and I know the Devil will want to stop the amazing things God has for us. I would love to call those who pray to pray for our protection against the things that the Devil tries to destroy. I know some people don't believe in this stuff. I know some people don't believe in the Devil and some don't believe Jesus is God.....but I believe Jesus is God and I believe that the Devil will try and oppose any miracle, anything good that Jesus is doing in our family. We have made HUGE decisions to do with our family and we are going ahead and we need protection.
I have had an extraordinary peace about these decisions.
I have some things I want to share with you that have impacted my life the last 3 months. These are some quotes from scripture.
Psalm 18: 30 " As for God, His way Is perfect"
This is an amazing verse. You know you try and do things the way doctors say or the way other human beings say but it is only until you spend time with the Almighty God do you realise that you need to do things His way and only His way and His timing is perfect, his way is perfect. I can say that this is what is happening in my life. The surgery and some other things....increased platelet count...did you know that every Thursday night my church group gets together to pray for healing and increased counts and favour on my life with what I do and success with what I can do and more....God is allowing me to reach out and grab those things that FA people don't think they can have....and giving me courage to do things that are despite transplant. God gives the people who choose transplant, courage to do that because it is His will. God gives me courage to do what is His will in my life...and he has given me extreme peace with it.
If you don't have FA and you are unhappy about your life. I want you to think about something. God's way is perfect....but you need to find His way not yours...and stop fighting to do everything your way and not His....don't be subborn with what you think....don't complain and yell at people about what you hatef doing. If God opens a door in your life for you to have a better thing then acknowledge it and thanks Him and grab it...don't let it go...and don't take it and complain bitterly about it. Families are important to us...children are important....but God is the most important and what He has for your life as an individual is important...I am not saying that doesn't include your kids....it does....one of the most wonderful ministries is being a mum and making sure your child knows you love her or him.....also that is bringing the child up right to not be selfish, to learn to do things on their own amongst the love....but never ever forget what God has for YOU as a person...never forget that you are important to Him and that He has a plan for YOU..........I needed to share this tonight and the right people read it and I hope God speaks from it.
Another verse is Psalm 18:18 " They confronted me in the day of my disaster, but the Lord was my support".
I have felt so confronted by FA, doctors, leukaemia and so on....by the box that we are put in but I will not be boxed. I will do what God wants for me and He is better than any of this....and if that includes taking risks to do what I feel is right...then so be it...but I think God has told me...."remember I am your support"....He is supporting me through what I am doing and I can feel Him lifting me up. I challenge you....do you feel Him lifting you up through your decisions and attitudes? Are you making the right decisions by God....not just convience...I am not talking to just FA families but other people too.......remember that God has a way...and his way is perfect...you cannot do it any other way and feel happy...what God tells you to do....whether you like it or not.....acknowledge it because when you do...the peace that flows!
I am happy with life right now....please pray for protection on our family as do what we believe God wants us to do.....
Love Charisse
Wednesday, August 8, 2007
Isaac
Hi All,
update on Isaac and his teeth. So he went to the dentist today..the paed....and he was so good. He let the guy look in his mouth and count his teeth and even have an x-ray without any complaint...I am so proud of him. The tooth he chipped only a couple of weeks ago has stripped the enamal off his tooth and is making the spongy part of the tooth vulnerable and so the tips of the nerves can be there and make him uncomfortable. He has been saying that the milk is too cold for him and all. So they want to build up that tooth to take the chip away and make it look normal again and put a protective layering around it as well. He also is slightly tongue tied so they are gonna snip it and cortisise it (sp?)...this will all be done under General Anasthetic and take about 45 mins at the most. They will let us hold him while he goes to sleep to make him feel more comfortable...which is good. It will be nice to have all this fixed! Isaac did well today and we are proud of him.
So that is my small update. Remember if you want to know what exciting new things are going on with us as a family and my latest surgery coming up refer to the other entry!
Love ya all,
Charisse
update on Isaac and his teeth. So he went to the dentist today..the paed....and he was so good. He let the guy look in his mouth and count his teeth and even have an x-ray without any complaint...I am so proud of him. The tooth he chipped only a couple of weeks ago has stripped the enamal off his tooth and is making the spongy part of the tooth vulnerable and so the tips of the nerves can be there and make him uncomfortable. He has been saying that the milk is too cold for him and all. So they want to build up that tooth to take the chip away and make it look normal again and put a protective layering around it as well. He also is slightly tongue tied so they are gonna snip it and cortisise it (sp?)...this will all be done under General Anasthetic and take about 45 mins at the most. They will let us hold him while he goes to sleep to make him feel more comfortable...which is good. It will be nice to have all this fixed! Isaac did well today and we are proud of him.
So that is my small update. Remember if you want to know what exciting new things are going on with us as a family and my latest surgery coming up refer to the other entry!
Love ya all,
Charisse
Sunday, August 5, 2007
Interesting....
Hello All,
to give you all an update. The new IVIG product didn't give me many problems this time! YES! I didn't have headaches or flu symptoms or the pain I get with it. I had slight fatigue and tremors but I felt heaps better and didn't spend my week in tears like I have the last number of infusions. I really pray that all the infusions will be like this from now on. What a relief.
I am feeling much better. I still have a cough but it is going. The infection is gone I think. Bloods were improved this past time as well which I am really pleased about. Nuets were 1500! I am pleased with that.
I think I will still have that MRI but because I have an anaesthetic, I needed to wait until I am more well from the cough.
News! I am having surgery in about 6 weeks. It is a private issue for me but I thought I better let you know I am having the surgery. It is a gynae surgery but I wanted to let you know not to worry...no cancer or anything like that. It is a big surgery and I will take some time to recover. So please keep me in prayer. They will be cutting me. I will be in hospital for a week at the least and more if I need it. The date is 19th Sept. All steam ahead unless for some reason it gets cancelled. I will have a boost of platelets because the surgery requires really high platelets and mine are not in that range...as you know they dropped a bit since the blast count went up a little...but all is stable. My counts are very stable right now. Just don't have high enough for this surgery and they will be cutting me and I wanted to be safe. This would be the first time I have had platelets all my life....well I had them when I had a reaction to quinine when I was 17 years old...it wiped my count out from 150 000 to 2000...but since then I have never had one...not even when Isaac was born...my count boareded on 120 000 when I had Isaac. I am often private with my counts but my platelets are not that high anymore either but not low enough for needing platelets...except with huge procedures. So I am actually nervous about it. Isn't that strange...something I don't have to do and so I get scared about it...hmmm...so many kids and different people have to have it and I bet those kids are less scared than me.
Ok, so now to update on Isaac. He is well and back at kindy. We were supposed to meet with the paediatric dentist last Wed and we got the place mixed up and had to re-sechedule for this Wed. His tooth that was going black has lightened up again and is close to the normal colour of the other tooth! Praise the Lord! God answered my prayers with a little thing like this!
I am trying to work this week. Need to ring my hospital and put my name down for a nursing shift. I will be having a couple of months off work after the surgery and need to make myself known before then...get a doctor's note from my GP about it and probably should do all my drug calculations, manual handling and CPR certificates with the hospital before my surgery. Then when I am ready I can just go back and practice without having to do all this after.
Alan is good. Working as per usual. And he has Mon and Wed with me at home but I am sure that some of those days are mostly spent doing his private company. There are days that we choose to have only for us and go on an outing though. He is trying to set up his new company properly.
Well, I am gonna go. I am waiting to hear from 2 friends when they go into labour. Hehe...I may go visit one of them this afternoon while Alan is working....may be Isaac is settled asleep...I don't know...we will see.
Oh I am still knitting. It is very relaxing and I am a lot faster now. I am working on my 3rd square. I would be further along but the infusion trouble made it hard to knit with all that pain the last couple of months...I am doing more now though.
All of those families going to camp...I hope you all have a wonderful time! I will hopefully get to go another time!
Love you All,
Charisse
to give you all an update. The new IVIG product didn't give me many problems this time! YES! I didn't have headaches or flu symptoms or the pain I get with it. I had slight fatigue and tremors but I felt heaps better and didn't spend my week in tears like I have the last number of infusions. I really pray that all the infusions will be like this from now on. What a relief.
I am feeling much better. I still have a cough but it is going. The infection is gone I think. Bloods were improved this past time as well which I am really pleased about. Nuets were 1500! I am pleased with that.
I think I will still have that MRI but because I have an anaesthetic, I needed to wait until I am more well from the cough.
News! I am having surgery in about 6 weeks. It is a private issue for me but I thought I better let you know I am having the surgery. It is a gynae surgery but I wanted to let you know not to worry...no cancer or anything like that. It is a big surgery and I will take some time to recover. So please keep me in prayer. They will be cutting me. I will be in hospital for a week at the least and more if I need it. The date is 19th Sept. All steam ahead unless for some reason it gets cancelled. I will have a boost of platelets because the surgery requires really high platelets and mine are not in that range...as you know they dropped a bit since the blast count went up a little...but all is stable. My counts are very stable right now. Just don't have high enough for this surgery and they will be cutting me and I wanted to be safe. This would be the first time I have had platelets all my life....well I had them when I had a reaction to quinine when I was 17 years old...it wiped my count out from 150 000 to 2000...but since then I have never had one...not even when Isaac was born...my count boareded on 120 000 when I had Isaac. I am often private with my counts but my platelets are not that high anymore either but not low enough for needing platelets...except with huge procedures. So I am actually nervous about it. Isn't that strange...something I don't have to do and so I get scared about it...hmmm...so many kids and different people have to have it and I bet those kids are less scared than me.
Ok, so now to update on Isaac. He is well and back at kindy. We were supposed to meet with the paediatric dentist last Wed and we got the place mixed up and had to re-sechedule for this Wed. His tooth that was going black has lightened up again and is close to the normal colour of the other tooth! Praise the Lord! God answered my prayers with a little thing like this!
I am trying to work this week. Need to ring my hospital and put my name down for a nursing shift. I will be having a couple of months off work after the surgery and need to make myself known before then...get a doctor's note from my GP about it and probably should do all my drug calculations, manual handling and CPR certificates with the hospital before my surgery. Then when I am ready I can just go back and practice without having to do all this after.
Alan is good. Working as per usual. And he has Mon and Wed with me at home but I am sure that some of those days are mostly spent doing his private company. There are days that we choose to have only for us and go on an outing though. He is trying to set up his new company properly.
Well, I am gonna go. I am waiting to hear from 2 friends when they go into labour. Hehe...I may go visit one of them this afternoon while Alan is working....may be Isaac is settled asleep...I don't know...we will see.
Oh I am still knitting. It is very relaxing and I am a lot faster now. I am working on my 3rd square. I would be further along but the infusion trouble made it hard to knit with all that pain the last couple of months...I am doing more now though.
All of those families going to camp...I hope you all have a wonderful time! I will hopefully get to go another time!
Love you All,
Charisse
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