Isaac is funny/camp sunshine

I am sick!!!! Ahhhhhh...that is what I feel like doing. I caught Isaac's virus that he is recovering from. I feel awful. I woke up this morning and sat in the lounge and a tear ran down my face...you think that is dramatic? Well...you see I hate being sick or sore or anything else and sometimes I just feel fed up with feeling so under the weather..I only just got over most of my IVIG reaction...today I have been sleeping in bed most of the day and just got up to write in my blog.

Anyway, yesterday Isaac made me laugh. I knew I was coming down with something yesterday. I felt so strange...anyway....it is nice to have a little boy who brings so much laughter into one's world.

After his sleep yesterday, when I told him we had to go to his doctor for a check up he said, "but i feel better"...and I said, "Well we are going for a check up with the doctor and he can check your throat and your ears and tummy"...and he said, "will he look at my nose? It is big...it is big....and blocked...and my nostrils"...and he starts describing his nostrils..very interesting. My mum was in the next room and called out "what is he talking about"...anyway...it is actually really funny, My sister and Alan joke about nostrils all the time....Alan has even written a silly poem about my sister's nostrils and left it on the fridge...of course mum comes to visit and saw it and thinks we are all crazy and laughs....Isaac obviously was listening to me talk to my sister when Alan insisted I read this stupid poem to her on the phone....I realised that is why Isaac is now talking about nostrils and start laughing...now when I laugh I laugh hysterically...and Isaac finds this highly amusing you see....so he just has a big smile.....and then he will say, "mummy, stop laughing....shhh....no laughing...shh....stop"...in amongst this time I am trying to quit laughing and keep giggling and he will always say, "stop"...with a smile...and, "shh, shh"...it is actually really funny....I find it funny.

So on our way back from the paediatrician, I was strapping him back in his seat for the car ride home..and I don't know what he said but he pulled my face close and said something and smiled SO cute....so I kissed him on his forehead...he said something esle which was prescious and I started to just laugh..so much that I had to hang on to his car seat to stop from falling over...Isaac has a huge smile on his face and he has his finger up to his face, "shh...stop...shh...drive!"...he doesn't say this mean like. He has a huge smile on his face the WHOLE time and finds it very funny that mummy laughs like she does...and Isaac trying to tell me to "stop and drive" with the smile on his face makes me laugh even more...then he starts to giggle...anyway...this happens all the time with different things and it is really funny.

OK....now for serious stuff again. At the beginning of the year we applied for a grant from some place here in Australia ...a research grant because we are "FA Australia" to get to Camp Sunshine...a camp for people who have the disease Fanconi Anaemia"..that is what I have. We were accepted and our whole fair was covered for getting there. The a week or so later..they pulled the grant from us and explained certain reasons to us.

Then we applied for another one that one of their people encouraged us to apply for and said that we had a good chance...so we applied...today, to much disappointment we were declined that grant and still do not have any money to go to camp sunshine. I have had tears. It is SO difficult in Australia sometimes because we are pretty isolated here with FA. It is not easy to wip up $10 000 to go to camp. That is how much it would cost us to just get there..and I don't think that is a secret. It is expensive from Australia. I am actually feeling very discouraged. We have applied to camp sunshine like we would be there...we are planning to be there...we just need help with finances...so we are trying one more thing for finances and I honestly don't know what will happen...if this fails...well be will not be able to come. I will be so disappointed because I have never met John Hanna...and am really wanting to meet him. Hi John! Don't mind me...but I long to meet you ...as you know....and I won't get to see people who I have made friends with from 2 years ago..and I don't know when I would see them again. Teresa and Tyler and Kristin....my close friends..I really want to see you all...and it would definitely benefit FA Australia to have the updated research from the lectures and stuff....

Anyway, pray an hope...pray that this last "finance help" may help...otherwise I will let you guys know the final decision...but it may be a last minute thing you see...these grants and finace things often leave everything til the last moment..so it is heaps hard.

SO there is my whole update. I hope people are well and I will keep you updated as to what is gonna happen next!
Love Charisse