Monday, September 3, 2007

Home a Couple of Days

Hello People,
I appreciate all who are showing support. I have been quite lonely and feeling quite upset. I can't wait until I am well again. I honestly have never felt this unwell before. I mean...may be when I was 17 and had kidney failure from an allergy to quinine and that made my counts drop to hardly anything.....BUT....since then, I don't remember ever being so unwell and so tired and exhausted. Having a shower makes me puffed and today I felt like I was going to throw up after getting out of bed. I ended up sleeping until 11am this morning...was exhausted from the shower and slept from 2pm til 5pm this afternoon. I am SO tired and feel awful all the time and I hate it. I felt teary and cried today because I would love to go out and visit friends but I feel sick in the car and I feel lonely. I honestly feel like no one understands how I feel...I know they probably do but I hate this. How many weeks am I going to be recovering. It is frustrating that this is something caused by sickness and not an elective surgery. I have to tell myself this is only the first week of recovery and that my house is bigger than my hospital room and I didn't have my son, Isaac, around while in hospital so I rested more and here I have him around and he is constantly active even though I am trying to do nothing. Alan is home with me but it is just more active being at home than hospital. I know it is important because it will make me stronger. I need the exercise...it is not even real exercise. I can't believe how pneumonia does this to you. I have only 3 more days left of the oral antibiotics. The infection should be gone. The fluid may take a little longer to go and the energy levels will take longer to come up. On Wednesday I have an appointment with my specialist at the hospital to do my counts and have a check up and all that. I hope my counts have come up higher. It scared me to have only 20 000 platelets. I have never been that low. Oh...except for when I had kidney failure when I was 17...they were knocked out from 150 000 to 11 000 and I had to have transufion. Now I am a proper adult and fully understand what is going on! My platelets had come up to 39 000 just when I left hospital so I hope they are higher again this week. It would be nice to see it recover. My Haemaglobin is usually at 14 (or 140) and dropped to 9.5 (95) while I was in hospital. I have never been there before either. My count came up to 9.8 (98) the day I left hospital so I really hope it is up a bit more this week but I know that haemaglobin can take forever to recover. What is weird is that my liver results that have always been high with enzymes were knocked down when I had pneumonia but the bilirubin was put up and I was jaundice. This is really weird that my counts went down towards normal. Guess what..the doctors do not understand but as I recover my liver counts are back up to where they usually are and the bilirubin coming down, reducing jaundice. It is like my normal counts for liver are just high and when I get sick they reduce to normal and when I am well they go back up where they have been for years and I feel more well. Doctors are amazed how strange that it.

Anyway, I really should go. My back is sore from the computer. Oh Isaac was back at preschool today which was good for him. He only goes until 1130am but it was good for him to be around children again even though he felt upset about it this morning. Alan stayed with him for a while to make sure he fitted in again and we made sure he knew mummy would be home when he got home. That made all the difference.
I will update soon again.
Love Charisse

9 comments:

Anonymous said...

Hi Charisse,
I emailed you earlier today, but have just read your latest blog entry. I am glad you are feeling a little better.
remember that your body heals when you sleep. dont be worried about sleeping a lot - your body is repairing.
Will be thinking of you for your next blood work.
love to isaac.

brooke
xx

Anonymous said...

Dear Charisse,

I am thinking of you always and hoping for good progress in your recovery. You are right to remember that being home takes much more energy, so continue to be understanding of yourself. Sleeping is good, as brooke said. I'm glad you're looking into some additional home help...I bet Alan is exhausted! Keep up your spirits... your whole FAmily is sending you love!

Ann said...

Charisse,

I have been thinking about you and praying for you. Just keep on holding to God's unchanging hand. He is holding you and carrying you. I will be also holding onto my faith that God will heal you and make you well agian. I am believing that for you.

Fear not tomorrow,God is already there.
"Do not fear, for I am with you; do not anxiously look about you, for I am your God."
Isaiah 41:10 (NASB)

Just when you think He's all you have, you will find He's all you need.

"But My God shall supply all your needs according to His riches in glory by Christ Jesus."
Philippians 4:19 (KJV)

Keeping you in my prayers always and always close to my heart.

God Bless!
Love,
Ann

B said...

hello charisse,

just read your blog. will be praying for your recovery. we are in the states now going through a very difficult time , too. we were supposed to attend the FA camp in maine but we weren't able to as jack got a fever and his counts started to drop as well. he was admitted to the LA Children's hospital a few days ago for transfusions again.

juni
www.savejacksimbulan.blogspot.com

Siouxsie said...

Hey, Charisse:
I'm sorry that things are such a struggle. It really gets so horrible to feel so yucky for so long. I can't even imagine how stressful this must all be. You do such a great job hanging in there, though. I hope you feel heaps better really quickly.
All my love & prayers:
Siouxsie

Anonymous said...

Oh I'm so sorry you're still feeling so badly! Continuing to lift you up in prayer!
Philippians 4:6-7 Be careful for nothing; but in every thing by prayer and supplication with thanksgiving let your requests be made known unto God. And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus.

Anonymous said...

Charisse,
I don't write comments much but know that you are always in our family's thoughts and prayers...
We hope you are feeling even better today...
Kim and John Connelly (Evan - 5 y/0 with FA)

Anonymous said...

BIG BEAR HUGS AND KISSES! Hmmmmm, maybe I shouldn't squeeze too tightly! HA! Hang in there and know we are praying for you all! Hospitals aren't the best place to get rest you know! Nicholas said, "I've had enough of these hospitals!"

Blessings and Bear Hugs!

Anonymous said...

Stopping by to let you know I'm praying!
Psalms 31:1-3 In thee, O LORD, do I put my trust; let me never be ashamed: deliver me in thy righteousness. Bow down thine ear to me; deliver me speedily: be thou my strong rock, for an house of defence to save me. For thou art my rock and my fortress; therefore for thy name's sake lead me, and guide me.