Discouraged

Hello Guys,

well I still have the headaches....not nearly as bad as needing to go in hospital, but they are still there. I am feeling a little worried. The headaches could be increased by stress as well as the IVIG's. I have not had my eyes tested for a while..but don't seem to have trouble with my eyes..but I suppose you could just get headaches. We still have not had the MRI but will push for that to be soon. I was trying to just relax a bit since the drama. My IVIG is in a week and a half and I feel stressed about having another one because of the extreme reactions. OH dear.....waiting for the doctor to ring back about details to do with the IVIG and a new product. I also have some ulcers in my mouth which usually add to a headache...they are on the side of my tongue where it really hurts and my ear seems to hurt from it. So I have something to numb it which does help. I have not had them for ages, literally and think it must be the stress from the headaches and stuff. I am really tense in my muscles and think that may be regular, gentle massages would help. So Alan and I talked about finding out about all that. It may help me be more relaxed and sleep better and have less headaches....we both know the MRI is still a priority...just trying to help other areas as well to get rid of headaches.

Then a week a go I noticed that Isaac's front tooth was discoloured and was really discouraged. I know that a couple of weeks a go at church he had a head on collision with another child and had blood in his mouth. However, Alan and I couldn't see anything wrong with his front teeth.....must have bumped it then...surely. It is quite discoloured now and I am sure the nerve has died. I rang the dentist and have him in for an appointment tomorrow at 4.45pm. They will do an x-ray and will be able to see the nerve and what it is doing. He has a beautiful smile and when he smiles he shows his gums and his teeth and I am so sad about his tooth. Hopefully we can do something about it so it doesn't look awful. They may be able to whiten it and then he will not feel weird about it. He has been good....it doesn't hurt or feel strange...he tells me...we have been practising how we will do at the dentist. This will be his first proper visit and i am a little anxious. People have told me that his tooth is not too noticeable but it can be seen. I know some people will read this and think, "it will be ok"...and I know it is a baby tooth and will fall out and be replaced one day but as a mum, anything that happens to teeth...baby teeth or not...it can be very upsetting. I went to see a friend on Monday and her child and Isaac play together and she said when her child chipped his tooth she was crying like I have been and she understands the "mummy blues". That helped. She and I are very similar with our feelings and I appreciate her supporting me. So I am trying to not get too upset and see what the dentist says as well...Isaac has a good mouth of teeth...very healthy...so that is good.

On Monday night Isaac woke at 11pm with croup. That is always scary and we sat in the bathroom with the steam which didn't seem to work as well as it usually does. Isaac's G.P gave us some baby prednisolone last winter to use for croup when the steam doesn't work....so we don't have to go out in the freezing cold to the hospital...Isaac communicates now and tells me how he feels and he was a bit panicked. He asked us to call our doctor friends...which was good because we know they are up late (not calling just because Isaac asked) and I didn't know the new dose of prednisolone for Isaac's new wait...so we rang and they said we were doing everything right....told us the new dose and we gave Isaac the medicine. If he still had trouble with breathing an hour or two later we would go to the hospital...I would call the ambulance so he didn't have to be in the wintery, freezing cold. I think that is better for croup. But we didn't have to. The medicine worked as well as the humidifier and Alan slept in the room with him to make sure he was ok...we got to sleep late but it all worked out. Isaac is a lot better today.

So, we have a visitor coming tonight and I am going to go relax. Please pray we get the headaches sorted out. Although, my week doesn't sound like it has been too relaxing and that probably doesn't help.
I hope you are all doing ok!
Love Charisse