Ah ok....I can see the computer screen much better now. The headaches are getting less and less and the pain regime is working....praise the Lord. I needed that rest in hospital and I needed that IV fluid and I needed those strong pain relievers to break the headache.....man that was horrible. I am still going for the MRI to check the brain....and will see my specialist again sometime and I hope the IVIG product has been ordered as the other one for my next infusion...I am feeling nervous about the next one...I don't want to feel that pain again and be so debilitated from it...it really frightened me and made me feel unhappy......so there were some funny things that happened in the middle of it all and I feel up to sharing...hehe....haha...already I am giggling.
So the Sunday I woke at 5am with the headache raging....and then started to vomit after waking Alan.....we rang the locum doctor to come to our house and he knew about IVIGs...usually I am very protective of myself with doctors...you all know I have a problem and it can be a problem ringing in a strange doctor for me....it is a problem me going to the emergency room...I go crazy and get very upset....but this guy...he walks in...now the afternoon and I am still very nauseated, having had any fluids and been tossing and turning...he came in and I always look at them to check them out...what is my first response to this person? How much will I let them do? Are they going to respect me? All this goes on in my mind within seconds of them arriving...but this young kind of doctor says, "hey, she's already looking at me weird"...with a sense of humour and I laughed...I couldn't believe I laughed...and from then the house seemed crazy...Isaac coming in and demanding things...the doctor laughing at Alan running around after Isaac and myself....he was actually laughing and making funny comments...hehe...then the injection in my bottom....ahhhhh....they find the muscle near your hips where the Bone marrow biopsies and stuff are done...now I have had about 24 of those done...I am SO sensitive...I saying, "Oww, Ouch...ahhhhh...."...and then laughing...he says, "I have not even done the injection yet! (laughing and carrying on)....so I say..."hey, Isaac if you want to see the needle , go and watch!"....the doctor thought that was strange and made a comment....and then as he put the needle in I flinched and started going "Ouch, Ouch...ahhh....it hurts"....Isaac says to me, "Calm Down, Calm Down...it will be alright"...and then we all laugh...it was like a crazy place...and then the doctor says, "you are the most funniest person I have ever seen in pain!"...with a giggle...it was funny....too bad that hours later the pain med didn't work and I ended up going to hospital.
While at hospital...I am rocking myself on the bed...I am in so much pain...and they come in with a subcut butterfly...you have to understand I am freaked out by having any kind of port in me....and so I say, "I have never had one of those before"...and stare at them.....they go to explain...I said, "Yes, I am a nurse...I have put those in people before,...but never had one myself"....Alan and the nurses just looked at me...the nurses looked like they didn't know what to do...you see I am protective of myself and anxious and in lots of pain and aggitated...Alan gave me a reassuring look and so I consented and the pain relief was such a relief...hehe.
Then...now I know that many of us are very familiar with Medical Emergency Teams...some have even needed to watch their loved ones have these teams...so please know that I respect that...my brother had these teams working on him when he passes away and it was traumatic....but I amused myself in hospital once in reference to this...this is not meant to make people get upset. At work (I am an RN) we carry what we call the criteria for the MET (Medical Emergency Team) to be called whenever someone meets the criteria...we are trained to respond and I am used to hearing the announcment....so while I am lying on the bed at the hospital and fast asleep....all drugged up...there was an announcement over the hospital that the "MET" team was needed in the appropriate location....I sat upright in bed....and for some reason thought I was at work and I better respond....I was so confused...the confusion for me I found amusing....afterwards I actually had to sit there and work out I am a patient and it is not my responsibility to respond...it is ok....that was weird.
Then another time...I am busting for the bathroom...and they are just pumping all these fluids into me...I am busting and Alan was not there to help me unhook everything....I am so used to...as the nurse...unplugging the cord, winding it up, and walking the patient to the toilet....so i go to unplug the cord and wind it up and move it all around...and I get the electric bed cord, the TV cords and the IV lines all tied up together and then I am standing there like I am gonna bust trying to undo it all! I was so embarrassed and drugged and unsteady..very amusing...I had to call the nurse and she came in and just laughed at me...in a nice way....and she helped me get it all undone and to the bathroom before I burst....so that was funny.
Hehe...I saw my GP yesterday for some follow up...so I am telling him all about this and we are laughing in his room.....he is shaking his head and sayiang, "I don't know you! I don't know you!"....it was funny...I was telling him the stories...he thinks I would be a difficult patient (and he is right)...but he just laughs at how I do things and how the medical staff are drilled by me...he thinks it is great that I have such control of my health care and that I have come a long way with trusting people....it used to be even harder than me...I wouldn't allow treatment at all!
So there are some funny stories...hehe...I enjoyed writing them......
Oh another one....this is funny...I already shared with some people...like Teresa and Kristin....I even wrote it in Teresa's guestbook....but she was talking about getting new contacts...for her eyes...and it reminded me how I struggle with wearing glasses...any kind...sunglasse....so this is what happens when I wear glasses...an example of the sunglasses...I am driving in the car, wearing sunglasses...I get a bad twitch on my right eye when wearing anything on my eyes....bad...you can see it and it feels strange....so I am driving, Isaac in the back seat...in his car seat..I turn the music up a little so Isaac and I can enjoy...we stop at the traffic lights..I feel a little tired and so I lean on the door while at the lights...meanwhile a guy has stopped at the lights next to your car...innocently you look up at them because they are just people.....my eye starts twitching badly and all of a sudden this guy thinks you are winking furiously at him...very embarrassing...the lights go green and off you go...feeling relieved...I laugh every time I think of it....
Ha...when I was getting ready for my wedding in 1998 they were putting eye make up on me and I was wiggling off the chair...my eyes were twitching and I couldn't stay still on the chair as they tried to apply it...everyone was laughing...when I did sit still....my eyes went crazy! It does not look normal!!!! Giggle, GIGGLE, GIGGLE! Anyway, it took a while to do my eyes!
Well, I better go...don't want to strain my head...or eyes to make my head and I should calm down for sleeping! Ha.....keep you updated with the headache stuff.....and hope you enjoyed my stories!
Love Charisse
12 comments:
HA HA HA.....I think you are still on pain meds!!! I like the winking part the best! Too funny! I don't know...maybe the responding to the MET call.....nah, the tangeled cords! They are hard to straighten out when you aren't the patient!
Keep winking! Love ya! and I'm going to miss you all at camp like crazy!
Hey Charisse, I remember a funny story. It happened when you were in hospital (18 yrs old I think) after your allergic reation to quinine. The curtains were drawn and the specialist had come to see you. Two interns were standing at the door (told not to come in because you didn't like interns). In you 'poisoned stupor' you looked at them both peering in the door and called out, "Who are they?" "Interns" said the doc. so you called them in and said "What's your name?" They responded appropriately...you said something like..."have I met you before?" Then you promptly said to them "You can go now." They were summarily dismissed and they both hightailed it out the door again. Hmmm! I bet they had a story to tell.
Then on another occasion, when you were recovering from this episode and had blood red eyes from your knocked out platlets, you caught the bus home from uni. Some guy sat next to him and you didn't particularly want him there, so you looked him straight in the eye and said, "Hullo." He promptly took one look at you and moved away. Freaked out no doubt.
Hmmm! It pays to have a sense of humour even when things are tough.
Keep laughing...it does your heart good.
Love Mum
Hi again,
I meant that some guy sat next to YOU on the bus.
Mum again
When dealing with the unknown there can be a lot of fear. So I wanted to find a verse about fear and, of course, the first place I always look is in the Psalms. I started looking at the verses and realized that the majority of them spoke of the true fear that we should all have. So I decided to share this passage today. Praying as always!
Psalms 34:6-9 This poor man cried, and the LORD heard him, and saved him out of all his troubles. The angel of the LORD encampeth round about them that fear him, and delivereth them. O taste and see that the LORD is good: blessed is the man that trusteth in him. O fear the LORD, ye his saints: for there is no want to them that fear him.
Always keep your eyes on the Lord no matter what happens. Continuing to pray so very hard!
Psalms 40:1-4a I waited patiently for the LORD; and he inclined unto me, and heard my cry. He brought me up also out of an horrible pit, out of the miry clay, and set my feet upon a rock, and established my goings. And he hath put a new song in my mouth, even praise unto our God: many shall see it, and fear, and shall trust in the LORD. Blessed is that man that maketh the LORD his trust...
I use this verse every once in a while because it's so good. Time to share it again! And time to be praying for you again!
Psalms 18:2 The LORD is my rock, and my fortress, and my deliverer; my God, my strength, in whom I will trust; my buckler, and the horn of my salvation, and my high tower.
I just left a comment and messed up and it's all deleted.
Anyway, I thought it was all hilarious. It had me laughing out loud a lot. I like the story about the doctor who visited and siad you were the funniest person in pain he's met. He sounded like the perfect dr for you. That was too funny. Wish I could've been there!
That was hilarious about you thinking you needed to respond to the MET call. haha!! Could you just imagine a lady on lots of medication and a little loopy walking in to help someone else? hehe...to funny! Everything you did was funny and amusing.
I thought your mom's post was very funny too. That one had me laughing out loud a lot. I can totally picturing you being bossy to the interns and sending them on their way. I'm betting they weren't used to that. haha!!
I'm sorry you've had such a horrible reaciton this time. I hope that doesn't happen again. I'm glad you were able to get some relief from it.
Love,
Teresa
My husband ends up using this passage in his sermons a lot. Wanted to share it today. Know that I continue to pray!!!!!!
Romans 8:35-39 Who shall separate us from the love of Christ? shall tribulation, or distress, or persecution, or famine, or nakedness, or peril, or sword? As it is written, For thy sake we are killed all the day long; we are accounted as sheep for the slaughter. Nay, in all these things we are more than conquerors through him that loved us. For I am persuaded, that neither death, nor life, nor angels, nor principalities, nor powers, nor things present, nor things to come, Nor height, nor depth, nor any other creature, shall be able to separate us from the love of God, which is in Christ Jesus our Lord.
Know that you're in my thoughts and prayers!
Psalms 61:1-4 Hear my cry, O God; attend unto my prayer. From the end of the earth will I cry unto thee, when my heart is overwhelmed: lead me to the rock that is higher than I. For thou hast been a shelter for me, and a strong tower from the enemy. I will abide in thy tabernacle for ever: I will trust in the covert of thy wings. Selah.
Praying that the Lord will bless you with peace!
Philippians 4:6-7 Be careful for nothing; but in every thing by prayer and supplication with thanksgiving let your requests be made known unto God. And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus.
Hi Charisse , been thinking about you alot lately , love and hugs
Maria
Hi, well be sensible, well-all described
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