An FA doctor has been in contact with me. It appears that sebaceous carcinoma is commonly associated with the Muir-Torre Syndrome. I don't know much about this disorder but it is an autosomal dominant inherited disorder and involved different types of cancers.......this is a vague overview....polyps, skin cancers and benign growths.....this is just SMALL info that I have found...I would need to talk to a genetic cousellor to understand it more....it is also a DNA disorder. The cancer I have is rare but when it pops up is usually associated with this syndrome......I am guessing with this disorder and FA DNA disorder that makes cancer a real problem and surveillance high. The idea of this makes me feel INCREDIBLY scared and overwhelmed. I am actually feeling a bit cross, emotional, alone, terribly frightened and praying like anything that I don't have it. I don't want FA.....but I would prefer to ONLY have FA.....not this other thing as well.
Arrangements have been made, via suggestion of a highly respected FA researcher and doctor, to have the tumor examined for this other disorder to find out if I have this other disorder as well. So that is what we will be doing next.
Please pray for me. I do feel panicked.
I need to get to sleep. I must got to work tomorrow.
Love Charisse
17 comments:
Charisse,
You know we are praying along with you! Hold on to your faith and don't turn loose! Its only with God that all things are possible! I know HE is hearing our ROARS! Praying for the peace of God that passeth all understanding to be with you....always.
Blessings and Bear Hugs,
CHARISSE,
THERE ARE SO MANY PEOPLE PRAYING FOR YOU!!!! I PRAY THAT YOU WILL GAIN STRENGTH AND WILL OVERCOME THIS CANCER!!!!
MICHELLE
Just want to tell you that you're in our prayers and we love you lots. It must be hard to hear additional stressful news but know that you have lots of love & prayers coming your way. :-)
Praying for you, Charisse. If you want or need to chat, I am here. I can't do much, but I can listen and pray. Hugs.
Charisse, Know that you are not alone, and that your FAmily from all over the world supports you during this difficult time. Thinking of you from Copenhagen, Denmark - Sebastian, Marie-Louise, Tue and Kirstine
Charisse,
Hey girl!I have been up and down with health issues.Yeah it has been hard dealing with them but i keep my head up and pray to god that i will overcome these health problems.I have been having reflex really bad that i am on more medication.You are in my thoughts and prayers and yes i would be happy to talk to you more.
Nicole
Hi Charisse,
Hoping with you that this illness will be as easy as possible to overcome. Words cannot express what people feel when they listen to your story of your battles, your triumphs and your ongoing persistance to keep your chin up and face life full on. Inspiring as all as we need to be refocussed. Love Always, Jordan
My dear friend, know that I am praying always for you, and all FA patients and families. I know you are scared, but just remember that God is always with you. Lean on him, hold on to your faith, and let him take care of you.
I wish I could give you a big hug and reassure you more, so just imagaine, all of us out here giving you a big group hug, and saying prayers for you always.
Your friend always,
Judy
Hi Charisse, I know you are very scared right now, and I can definitely understand why! What a frightening possibility. I just want you to know that you are in our thoughts and prayers and that whatever the results, we pray that you will be giving comfort, peace, and strength through out it all.
Hugs/Love,
Teresa
Continuing to pray so very hard!
2 Corinthians 12:8-10 For this thing I besought the Lord thrice, that it might depart from me. And he said unto me, My grace is sufficient for thee: for my strength is made perfect in weakness. Most gladly therefore will I rather glory in my infirmities, that the power of Christ may rest upon me. Therefore I take pleasure in infirmities, in reproaches, in necessities, in persecutions, in distresses for Christ's sake: for when I am weak, then am I strong.
Hey Charisse,
Just want you to know that im thinking of you and hope all goes well. Stay positive and keep smiling. your the best.
love you lots
Darren xxx
We're praying for you darl, remember you are not alone.At times when you cant sleep and dont even know what and how to pray,ask God to touch me sothat I can stand together with you in the spirit.God has raised us for you.He'll take your pain away and give strength.Remember! In all these things we more than conquerers through Him who loved us.Take care! Flo
Hi Charrissy
Praying for peace and sleep....I know how hard that is for you. Take courage, remember GREATER IS HE WHO IS IN YOU THAN HE THAT IS IN THE WORLD....you will come through this and once again the devil WILL be defeated, no choice, a done deal....remember also when you have done all that you can do, just stand.....
Love you and you are never far from my thoughts.
Your old laughing partner Cathy T
Stopping by to let you know I'm still here praying.
Romans 5:1-2 Therefore being justified by faith, we have peace with God through our Lord Jesus Christ: By whom also we have access by faith into this grace wherein we stand, and rejoice in hope of the glory of God.
Breathe!!!!
sending you lots of love,
rachel
You're in the Lord's Hands! Praying!
Proverbs 3:5 Trust in the LORD with all thine heart; and lean not unto thine own understanding.
I'll pray that you don't have this other syndrome, and that it's an isolated cancer. We love you so much! Jesus is with you right now, and like that footprints poem says, he's carrying you through the hard times.
Love Leah
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