February 2007 entries

Saturday, February 10, 2007 7:46 PM CST

Hello Everyone!

Despite the top "date", it is actually 12.14pm on Sunday afternoon here the 11th Feb!

I have had a busy week. Monday, just gone. I had my shoulder ultrasound which showed that I have bursitis and that is why my shoulder is so sore. For those of you who are only just reading up on me now...I had a fall about 12 weeks ago through a deck chair and was holding Isaac so I didn't support myself...I naturally went to protect his head and damaged my shoulder. The bursa in my shoulder which carries the fluid to lubricate the joint of the shoulder has become inflammed from the fall and literally blown up. Whenever I move the joint, the bursa now becomes pinched in the joint. Cortisone injections deep into the shoulder are the usual treatment but my platelet count has been a bit low so we will check with my haematologist as to what he thinks is best. Otherwise, I might just try heat and ultrasound therapy on my shoulder. It will take a bit longer to get better but might be less risky. My shoulder has been very sore. I am glad that I know why now!

That Monday I also had my liver or upper abdominal ultrasound that I was "supposed" to have done a long while ago. My liver enzymes have been all high for years and they know it is related to the oxymethalone I was on for years to help my bloods. Even though I have been off the steroids for at least 4 years now, the enzymes continue to be high and so they keep an eye on my liver via ultrasound. I have not got the results yet. I need to see my specialist.

I had lots of "kindy blues" this week. It has been hard having Isaac start full time kindy. I am not used to being up at a certain time to pick him up! It is too tiring for me to get up to take him early in the morning so my husband does it....or mum helps out. But I have been trying to set a goal to pick him up every day and found myself in tears a lot and getting very tired. I saw my GP on Wednesday and broke into tears in his room. I talked about how I missed Isaac and felt so pressured by everything. I have had tests to do for my health and have some serious tests coming up....so I think I have been overwhelmed. My doctor helped me to put things into perspective and we have made a goal for me that is less stressful. The key is to understand that it is ok if I cannot pick Isaac up and that there are people to help. I tend to get flustered when I think I should be doing something and then I need some help! But hey...my doctor pointed out to me that many families have help these days and there is no "normal"...so to do the best that I can and not to go over and beyond my own boundaries. The talk helped.

On Friday just gone I had an MRI under anaesthetic. They checked on my sinus areas and my face...head and neck screening of cancer for FA.....just routine and then for my ear which is partly deaf and rings constantly...which drives me crazy many times! It went well. Although I was in a panic most of the time at the hospital. I was supposed to have my IVIG infusion after the MRI and no one seemed to know what was going on. The nurses felt like they were being difficult and I did not have confidence that it was all organised! So I had a few tears...not crying...just tears and a little panic at certain times. Alan's mum was with me and helped me to get through. Alan was also there at times. I ended on having my infusion and got home at 8.15pm that night.

I have been tired. Anaesthetic always seems to take a while to wear off for me. Yesterday I went to a wedding and then to Alan's dad's 65th b-day party...which was all enjoyable and I took it as easy as I could...but today I feel very tired. So I have had a shower and am sitting in my "day PJ's"...I never wear them at night. It feels nice to just dag around. Alan and Isaac went to church this morning but we thought it may push me too far if I went and that would have been right. I needed to rest and sleep. Just so you all know...I don't regret going to the wedding and the party. It was fun and I enjoyed being a part of these people's special day!

Ok, now...Alan and Isaac should be home soon. I wanted to read my Bible before Isaac got back!

Bless you all and please pray for me as I go for a bone marrow biopsy/aspiration on the 20th Feb!

Love Charisse