September 2006 entries

Saturday, September 23, 2006 2:50 AM CDT

26th September 2006 Tuesday.
***UPDATE***
Isaac had his doctor's appoitnment on Monday and he is doing a lot better. He is improving! Praise the Lord! The antibiotics for his chest seem to have cleared up that problem wonderfully! His diarrhoea...well he still has it but it has decreased its amount to only 2 times a day and the awful smell has gone...which tells us this bug is being treated appropriately with the antibiotics he is still on. His bottom is not so red and he will let me clean it and put on cream without screaming. We don't have to go to hospital! YES! Isaac's eating has improved over the last 2 days and his energy has picked up...he was like a whirl wind today. The doctor has cleared him to go back to kindergym and child care on Friday which is good. He was starting to get bored! Now that he feels better...he has some energy to burn. This is all such a relief. Now we can all get more rest as well! Isaac is still a bit vulnerable but improving. The doctor has said that if the diarrhoea gets worse again...we will go back and he sees his paediatrician again real soon as well. He is still on lactose free diet and no dairy for a while....but hey...we can handle that at long as he feels better and is not so upset. 48 hours or more of antibiotics really makes a difference. I am praying that he continues to stay well now!
Love Charisse
************



Hello All,

what a challenging week! Isaac is still sick with diarrhoea...Day 18! The doctor has become a bit concerned. Not only has Isaac had this bug for ages but he also has managed to have a chest infection for a week...which he is now on antibiotics for. They also suspect a different bug for the bowels...except to test properly for it, the child needs to be in hospital. Because Isaacs has gone for so long...we are treating for it anyway...so he is on a second lot of antibiotics for his gut. The doctor said that if he doesn't show much improvement with his chest of bowel by Monday he may need a visit to the hospital...or at least think about where we go with treatment next! Isaac has been really sick and very uphappy!

On a good note...my tongue is almost completely healed up. The ENT appointment went really well on Wednesday and today it is almost all gone...my tongue feels a lot more normal and only stings every now and then.

We watched Steve Irwin's memorial on TV this week. Very emotional and very Australian.

I had my IVIG infusion yesterday and it went well. Although at one point the nurse decided to let it free flow and it made me feel sick and get a headache and a sore wrist! We told them to put it back in the machine to regulate the rate...I just can't handle it going that fast!

My infusion reaction has gotten heaps better since my doctor (old one) put me on prophalactic steroids the day before the infusion! I am only experiencing tiredness, a little pain and altered perception as opposed to all that pain I used to have.

I see my new doctor for the first time on the 6th October.

Today we had lunch with Alan's family...Isaac saw his great grandma...that was really nice.

Tomorrow is a wedding...an African wedding and it will be interesting.

Monday, Isaac goes back to the doctor.

My sister, Liesl, is now 33 weeks pregnant tomorrow! It is getting closer....it is very exciting. I can't wait to meet my new nephew or niece....and Isaac can't wait to meet his counsin!

Well, I am going to go. I think Isaac just got up from his sleep.
Love Charisse



--------------------------------------------------------------------------------

Friday, September 15, 2006 1:30 AM CDT

Hello All,

well the burn on my face only took a couple of days to go away. So that is good. However, my tongue became really painful. At the end of the week the stitches fell out on my tongue and I was in quite a lot of pain. I was having trouble eating and talking did become a problem. Then it started bleeding a bit more...so Alan and I took a picture of it and sent if via email to my ENT to ask if we needed to be worried about it and he called only a short time later and asked me to come in the next morning at 9am. I thought he may put in more stitches...but he decided that we would wait and see how it would heal a bit because it was SO raw....and SO sore...and it the last 2 days the pain has decreased quite dramatically....but it still seems really open. The ENT said that the tongue can act similar to where your tonsils are and when you get them out...it is raw and seems to take forever to heal and then..it suddenly heals up. Anyway, I have another appointment with the ENT this Wednesday to check if anything else needs to be done. FA healing time is increased of course...so I will make sure this tongue heals properly. The pathology on the spot they took out came back normal and clear...Praise the Lord!

Poor Isaac has been so unwell. We are on Day 9 of diarrhoea....he has the rotavirus...a nasty gastro bug that goes around young children and babies. And it tends to make them lactose intolerant for a short while even after the bug. So Isaac is currently on lactose free formula and soy milk. We have had to cut out dairy and that is what he likes mainly..it is hard to explain to an almost 4 year old why he can't eat certain things. His poor little bottom has been so sore...we have had special cream for it. This virus runs for about 2 weeks...so hopefully we are nearing the end. He can't go to kindergym or Kindy or anything like that while he has this and is contagious...so we have been going on family outings...on Wed instead of kindergym we went to the Whispering Wall...a big dam that when you stand either side of it...when you talk you can hear the person clearly on the other end.

Please keep praying for fellow FA sufferers. Sweet Nicholas was coughing up some blood yesterday when I spoke with Donna...pray for him.

Well, I must be off....will update again soon.
Love Charisse