Tuesday, November 21, 2006 11:49 PM CST
Hello!
What a busy time we have had since Liesl's baby has been born. She came home today...so they will start a new life and routine at home now. The baby is doing well.
As for me...I am doing ok. I always get very emotional when babies are born! I am ready for a second baby myself and it feels frustrating that circumstances with FA can get in the way of your dreams. Sometimes it doesn't stop your dream but just delays it...others struggle to see their dreams fulfilled! Hope! Never give up hope to follow your dreams. If parents are reading this..never give up hope on your child to accomplish what they want to in life. If an FA teenager is reading this.....it can be an emotional journey with FA but never give up hope on building your life, marrying, getting a job, being with family, having a baby. If you are an FA adult! Well....go for your dreams that you have not fulfilled yet! I cannot ever let my dreams be taken away. I feel easily sad and depressed and I feel devastated when I can't see my dream and when I feel there is no hope.
I was reading my Bible and doing my devotions by myself while Isaac was asleep today. in fact Isaac is still asleep but I really felt like I wanted to share with you the inspiration that I have felt from my time with God today.
Firstly, I have been reading a lot about trees in the Bible. Hehe...sounds funny but it really is very inspirational.
Jeremiah 17: verses 7 to 8..."Blessed is the man who trusts in the Lord, whose confidence is in Him. He will be like a tree planted by the water that sends out its roots by the stream. It does not fear when the heat comes, its leaves are always green. It has no worries in a year of drought and never fails to bear fruit".
I really like this passage and I will not share the intimate things that I wrote in my journal concerning everything about my life. One thing I do want to share is that I am a born-again Christian. Jesus is my Saviour and Lord. My faith is a huge and very serious part of my life and part of my walk with FA. I often "see" myself crying or being overwhelmed by FA and by circumstances. Circumstances cause me grief and I cry uncontrollably sometimes. But today The Bible inspired me to take another look at my life. This verse is talking about a child of God...like me...who trusts in the Lord....I mean, think about a tree.. They have deep roots and are drawing on life giving water under the soil. In a drought their roots are SO deep that they still get what they need when everything else is drying up! It doesn't die. There is a lot of strength there and a lot of "fruit". It does not have to fear because its roots are so deeply planted. This passage talks about how children of God...men and women who have Jesus as their Lord and Saviour and compares them to be like a tree. I can picture another side of myself. No matter what happens on this FA journey...I have never ever felt like I want to turn away from God. He, soley, has been my strength. This is serious stuff.....my roots are so deeply planted into my God, that even though I may seem flustered on the outside at times....I have nothing to fear. This is a calming thought for me.
I would not usually share about all of this so much on this online journal. But today, it felt right to share.
Anyway, enough about that.....hehe...unfortunately I had a fall on Sunday. My deck chair gave way..the material broke and I fell with Isaac on my lap into the metal frame of the chair, hurting my back quite badly...and my arms and neck. I have a big black bruise on my back. I was protecting Isaac on the fall down so I fell weird and feel very sore.
Otherwise, back to normal living!
Love you all and have a good week.
Love Charisse
--------------------------------------------------------------------------------
Friday, November 17, 2006 6:48 AM CST
Hello!!!!
Exciting news! My sister had her baby today at 4.30pm on the 17th November. It was a long labour but she is doing well. Baby was a bit shocked after the labour and needed oxygen and is resting in the nursery. Liesl has breastfed and she looked like she latched on great. I bought has some clothes for the baby tonight. OH...she had a baby girl. Her name is Eliana Liesl Christie. She weighed 8 poun 4 oz. She was 51 cms long. She is gorgeous with her dark, black hair and a lot of it too! We didn't get to hold her tonight.....she was resting. Liesl looked a bit tired and so did Tim...but it is all very exciting.
More good news....Alan has the clearance from the doctor that he no longer is contagious with the chicken pox. It is over and gone and he is feeling much better...what a relief.
Since I heard that my sister was in labour I literally wept all day. I have not been able to contain my emotions. When I saw her I burst out crying and couldn't talk properly....not just tears...but real cover your face and cry....I wept on the way home and I cried full on cry when I got home. The tears come out of my eyes without control. That is a woman for you...and also all my feelings about having another baby coming out....joy and grief over FA and desires. I cannot wait until my sister is at home. Isaac has not seen her yet. I took a video and showed him it and he is excited that "baby is out of Liesl's tummy now?".....we will probably take him in tomorrow to see her and the baby.
Welcome to Tyler Junior,.....Teresa and Tyler and Emma have a new baby in their house. Congratulations to them as well. The Cliftons! It is wonderful. I cried full on when I heard that Tyler had come into this world.
Well I need to calm down and have some sleep. I had infusion today and am feeling very shaky.
Love you all,
Charisse
--------------------------------------------------------------------------------
Saturday, November 11, 2006 11:14 PM CST
***NEW PICTURES - of Isaac's birthday and of the Christmas Pageant***
I am actually feeling really down today. I am not feeling my usual self at all. This down feeling is so overwhelming.
Alan still has chicken pox. He is still getting new spots. He can't go near anyone. We both feel very down about that. I hope it is over soon. Alan is feeling better as in he is not feeling unwell anymore...but he is very itchy and has lots of spots!
Isaac is doing well. He is asleep right now. He is enjoying playing with all his new gifts from his birthday. We rescheduled his birthday party to the 25th November. We will have a cake and celebrate his birthday with his little friends after all this chicken pox is over.
Liesl's due date is today with her baby. Although we know babies don't always come on their due date. She is really ready for that baby to come out now. We are just waiting.
Anyway, I better go. Please leave a message to say hello. It really brightens my day when I read them and today I am especially low.
Bless you all and update soon.
Love Charisse
--------------------------------------------------------------------------------
Tuesday, November 7, 2006 4:48 AM CST
***UPDATE***
Wednesday 8th November
Alan has chicken pox! He broke out in spots today. On his scalp, his chest, back, arms.....so this is why he has been feeling so yucky. Actually, because Isaac had chicken pox we had been watching out for this. Alan had never had chicken pox....well now he has it...and on Isaac's 4th birthday. Despite Alan feeling so off and not being able to go near anyone...Isaac had a good birthday. He opened his presents with us this morning and was very excited over his Thomas accessories...and totetum tennis....we had to cancel his friends coming over because of Alan's chicken pox...but Isaac and I still went to kindergym. His friends gave him his presents there and He wore a badge that said he was "4 Today". He was very excited. We came home and had lunch with daddy and put candles on the cake and sang "Happy Birthday"....and then Isaac and I went to my sister's house to let daddy have a rest because he was feeling wiped out again. Isaac had a sleep at my sister's house and Liesl and I watched, "Sense and Sensibility"...one of those girl movies (hey Alan likes it too!). That was nice. Then Uncle Tim came home from work and Isaac woke up and they gave him his birthday present...which Isaac loved....we then came home. Isaac is now in bed and Alan and I are relaxing. Please pray that Alan does not suffer with chicken pox for long. I am safe from the chicken pox. I have already had it and when Isaac broke out I had the zooster immunoglobulin injection to protect me and the doctor says that I am still protected from this outbreak of Alans...so that is good.
Happy Birthday to Jacy Box! Happy Birthday for the 8th of November as well!
Ok, I am off to relax!
Love Charisse
***
Hello All,
I have not had much time to update. I had my gynae surveillance and so far so good. I should get some other results back in a couple of weeks.
Isaac is over the chicken poxs completely. Both Alan and I have felt really tired lately...my neutriphils dropped a bit and I have had some ulcers....could be any virus I have come in contact with that has done that...like chicken pox....but I have not caught anything and I may not necessarily catch anything....body could be just working to keep me well..and will go back up again.
Alan is not feeling too well though. He has felt like he has had the flu. But not the flu. He came home from work early today. It is unusual for Alan to feel this way. So I went out and bought him a "get well" present. Hopefully it won't be anything too much.
Isaac's birthday is tomorrow! He turns 4 years old! We have kindergym tomorrow. We will give him his presents in the morning, go to kindergym, and then come home and one of his friends from kindergym is coming over with his mum for lunch. And my sister may be coming too. Then on Saturday we have a group of kids from church coming over and Isaac will have a cake and stuff. It will be fun.
We don't have Thanksgiving here in Australia...so our BIG Christmas Pageant was on the 4th November. Isaac loved it! I have new pictures to put up.
My sister is 39 weeks pregnant now....and a few days...any day the baby should come...it is exciting!
Well, got to go!
Love Charisse
Welcome to my site! To gain some background on me and Fanconi anemia (FA), please read MY STORY (click here).
Thursday, November 30, 2006
Tuesday, October 31, 2006
October 2006 entries
Sunday, October 22, 2006 0:39 AM CDT
Thursday 26th October
**UPDATE**
Well, Isaac has chicken pox. He is at the tail end of it now. He broke out in spots on Monday and his last new spot was last night. He has only had 5 spots. Isaac was immunised as a baby, however, they can still get it even if they are immunised. It just is a lot milder. So Isaac has not felt sick or had any fevers. He has complained a bit of being itchy. But he has been alright. Our main concern is Alan...he has never had chicken pox. We have a script to go and get him vaccinated. As for myself. I had chicken pox when I was 17 years old and it was not nice. Even though I have had it...and have some immunity to it...because FA and chicken pox do not mix and can cause bone marrow complications I have to go for a globulin injection in my buttock tomorrow morning..priority one. This will protect me for a few weeks against getting the virus and severity. So my haematologist has arranged for me to have it in the morning tomorrow some time. I don't like injections in the but. I used to have to have this injections all the time whenever I came in contact with people who had chicken pox...or an out break at school. I remember staring my haematologist down when I went into emergency to receive the injection. They had to give me two syringes.....in both buttocks at the same time and I would cry and scream. I am not looking forward to this injection...but I am sure I will handle it better than when I was a child.
So that is my latest news. I hope all of you are going well.
Love Charisse
***
Hello All,
I am very behind in my updating! Sorry about all that. It has actually been a tough month for me...more than you can imagine. There are so many things going on in the background here...in my life...that I would not know where to start.
Sleep insomnia has been a problem for me. This has actually been a chronic problem on and off for me for a couple of years, however, specifically this past year....since I initially got the first marrow results back that showed the slight increase in blast count at the beginning of the year. Even though I may not share heaps about all that is going on, this issue is always on my mind and sometimes I become so overwhelmed by the whole issue.
The research into whether a transplant is the way I want to go is a constant thing. I know, I know....I am not able to make this decision quickly at all. There is a LOT involved in my situation.
So where am I with that? First things first...I have to have a liver biopsy to check that my liver could even handle a transplant. The oxymethalone I used to be on has caused high liver enzymes. I am not on it anymore. In fact I have been off it for over 4 years now. However, my enzymes remain significantly high. It doesn't affect my general health and before Isaac was born I had a liver biopsy which didn't show there was any signficant damage...just decreased amount of bile ducts in the liver. However, this needs to be checked by the transplant team again to see if I could even go ahead with a transplant. Sometime soon this will happen. I know it may seem like things are taking a long time to deal with here....but let me reassure you that it is not because the doctors are delaying, but because we have needed to go at my pace. And I need to go slow at the moment...even when I feel things are urgent, I feel like I can only go at my pace. Otherwise, life starts to fall apart for me. I feel like I am going crazy. I will take as long as it needs me to feel right about anything.
Sleep is a problem. As I mentioned. I have been sleeping do badly that my judgement is impaired during the day. We are trying to get me into a sleep specialist right now.
What else is going on......my gynae surveillance is coming up in 2 weeks under anaesthetic....hysterscope and so on.
I know I have some more specialist appointments.
My sister is now 37 weeks pregnant and we can't wait for her to have the baby.
Isaac has been doing well. He started pre-entry preschool on Friday just gone. We had some tears and when he got home that day he told me that he had missed mummy and cried at the gate. Poor love. It is so hard to not cry as a mum when dropping them off for the first time. I gave him to the teacher who hugged him as I left. I had to get to my IVIG infusion. I have been a bit shaky this time around after the infusion but it went well.
Well, I am tired. Infusion tired....so it has been a big day at church and I am going to go and lie down. I am sure that there is so much more to update on....but some things slip my mind...let me think........
Oh yes, Isaac turns 4 years old in 2 weeks! Also we have the Christmas Pagaent coming up. Isaac can't wait. This is the first year that he has asked about Santa Clause.
Ah yes....I will leave it for now.
Love Charisse
Thursday 26th October
**UPDATE**
Well, Isaac has chicken pox. He is at the tail end of it now. He broke out in spots on Monday and his last new spot was last night. He has only had 5 spots. Isaac was immunised as a baby, however, they can still get it even if they are immunised. It just is a lot milder. So Isaac has not felt sick or had any fevers. He has complained a bit of being itchy. But he has been alright. Our main concern is Alan...he has never had chicken pox. We have a script to go and get him vaccinated. As for myself. I had chicken pox when I was 17 years old and it was not nice. Even though I have had it...and have some immunity to it...because FA and chicken pox do not mix and can cause bone marrow complications I have to go for a globulin injection in my buttock tomorrow morning..priority one. This will protect me for a few weeks against getting the virus and severity. So my haematologist has arranged for me to have it in the morning tomorrow some time. I don't like injections in the but. I used to have to have this injections all the time whenever I came in contact with people who had chicken pox...or an out break at school. I remember staring my haematologist down when I went into emergency to receive the injection. They had to give me two syringes.....in both buttocks at the same time and I would cry and scream. I am not looking forward to this injection...but I am sure I will handle it better than when I was a child.
So that is my latest news. I hope all of you are going well.
Love Charisse
***
Hello All,
I am very behind in my updating! Sorry about all that. It has actually been a tough month for me...more than you can imagine. There are so many things going on in the background here...in my life...that I would not know where to start.
Sleep insomnia has been a problem for me. This has actually been a chronic problem on and off for me for a couple of years, however, specifically this past year....since I initially got the first marrow results back that showed the slight increase in blast count at the beginning of the year. Even though I may not share heaps about all that is going on, this issue is always on my mind and sometimes I become so overwhelmed by the whole issue.
The research into whether a transplant is the way I want to go is a constant thing. I know, I know....I am not able to make this decision quickly at all. There is a LOT involved in my situation.
So where am I with that? First things first...I have to have a liver biopsy to check that my liver could even handle a transplant. The oxymethalone I used to be on has caused high liver enzymes. I am not on it anymore. In fact I have been off it for over 4 years now. However, my enzymes remain significantly high. It doesn't affect my general health and before Isaac was born I had a liver biopsy which didn't show there was any signficant damage...just decreased amount of bile ducts in the liver. However, this needs to be checked by the transplant team again to see if I could even go ahead with a transplant. Sometime soon this will happen. I know it may seem like things are taking a long time to deal with here....but let me reassure you that it is not because the doctors are delaying, but because we have needed to go at my pace. And I need to go slow at the moment...even when I feel things are urgent, I feel like I can only go at my pace. Otherwise, life starts to fall apart for me. I feel like I am going crazy. I will take as long as it needs me to feel right about anything.
Sleep is a problem. As I mentioned. I have been sleeping do badly that my judgement is impaired during the day. We are trying to get me into a sleep specialist right now.
What else is going on......my gynae surveillance is coming up in 2 weeks under anaesthetic....hysterscope and so on.
I know I have some more specialist appointments.
My sister is now 37 weeks pregnant and we can't wait for her to have the baby.
Isaac has been doing well. He started pre-entry preschool on Friday just gone. We had some tears and when he got home that day he told me that he had missed mummy and cried at the gate. Poor love. It is so hard to not cry as a mum when dropping them off for the first time. I gave him to the teacher who hugged him as I left. I had to get to my IVIG infusion. I have been a bit shaky this time around after the infusion but it went well.
Well, I am tired. Infusion tired....so it has been a big day at church and I am going to go and lie down. I am sure that there is so much more to update on....but some things slip my mind...let me think........
Oh yes, Isaac turns 4 years old in 2 weeks! Also we have the Christmas Pagaent coming up. Isaac can't wait. This is the first year that he has asked about Santa Clause.
Ah yes....I will leave it for now.
Love Charisse
Saturday, September 30, 2006
September 2006 entries
Saturday, September 23, 2006 2:50 AM CDT
26th September 2006 Tuesday.
***UPDATE***
Isaac had his doctor's appoitnment on Monday and he is doing a lot better. He is improving! Praise the Lord! The antibiotics for his chest seem to have cleared up that problem wonderfully! His diarrhoea...well he still has it but it has decreased its amount to only 2 times a day and the awful smell has gone...which tells us this bug is being treated appropriately with the antibiotics he is still on. His bottom is not so red and he will let me clean it and put on cream without screaming. We don't have to go to hospital! YES! Isaac's eating has improved over the last 2 days and his energy has picked up...he was like a whirl wind today. The doctor has cleared him to go back to kindergym and child care on Friday which is good. He was starting to get bored! Now that he feels better...he has some energy to burn. This is all such a relief. Now we can all get more rest as well! Isaac is still a bit vulnerable but improving. The doctor has said that if the diarrhoea gets worse again...we will go back and he sees his paediatrician again real soon as well. He is still on lactose free diet and no dairy for a while....but hey...we can handle that at long as he feels better and is not so upset. 48 hours or more of antibiotics really makes a difference. I am praying that he continues to stay well now!
Love Charisse
************
Hello All,
what a challenging week! Isaac is still sick with diarrhoea...Day 18! The doctor has become a bit concerned. Not only has Isaac had this bug for ages but he also has managed to have a chest infection for a week...which he is now on antibiotics for. They also suspect a different bug for the bowels...except to test properly for it, the child needs to be in hospital. Because Isaacs has gone for so long...we are treating for it anyway...so he is on a second lot of antibiotics for his gut. The doctor said that if he doesn't show much improvement with his chest of bowel by Monday he may need a visit to the hospital...or at least think about where we go with treatment next! Isaac has been really sick and very uphappy!
On a good note...my tongue is almost completely healed up. The ENT appointment went really well on Wednesday and today it is almost all gone...my tongue feels a lot more normal and only stings every now and then.
We watched Steve Irwin's memorial on TV this week. Very emotional and very Australian.
I had my IVIG infusion yesterday and it went well. Although at one point the nurse decided to let it free flow and it made me feel sick and get a headache and a sore wrist! We told them to put it back in the machine to regulate the rate...I just can't handle it going that fast!
My infusion reaction has gotten heaps better since my doctor (old one) put me on prophalactic steroids the day before the infusion! I am only experiencing tiredness, a little pain and altered perception as opposed to all that pain I used to have.
I see my new doctor for the first time on the 6th October.
Today we had lunch with Alan's family...Isaac saw his great grandma...that was really nice.
Tomorrow is a wedding...an African wedding and it will be interesting.
Monday, Isaac goes back to the doctor.
My sister, Liesl, is now 33 weeks pregnant tomorrow! It is getting closer....it is very exciting. I can't wait to meet my new nephew or niece....and Isaac can't wait to meet his counsin!
Well, I am going to go. I think Isaac just got up from his sleep.
Love Charisse
--------------------------------------------------------------------------------
Friday, September 15, 2006 1:30 AM CDT
Hello All,
well the burn on my face only took a couple of days to go away. So that is good. However, my tongue became really painful. At the end of the week the stitches fell out on my tongue and I was in quite a lot of pain. I was having trouble eating and talking did become a problem. Then it started bleeding a bit more...so Alan and I took a picture of it and sent if via email to my ENT to ask if we needed to be worried about it and he called only a short time later and asked me to come in the next morning at 9am. I thought he may put in more stitches...but he decided that we would wait and see how it would heal a bit because it was SO raw....and SO sore...and it the last 2 days the pain has decreased quite dramatically....but it still seems really open. The ENT said that the tongue can act similar to where your tonsils are and when you get them out...it is raw and seems to take forever to heal and then..it suddenly heals up. Anyway, I have another appointment with the ENT this Wednesday to check if anything else needs to be done. FA healing time is increased of course...so I will make sure this tongue heals properly. The pathology on the spot they took out came back normal and clear...Praise the Lord!
Poor Isaac has been so unwell. We are on Day 9 of diarrhoea....he has the rotavirus...a nasty gastro bug that goes around young children and babies. And it tends to make them lactose intolerant for a short while even after the bug. So Isaac is currently on lactose free formula and soy milk. We have had to cut out dairy and that is what he likes mainly..it is hard to explain to an almost 4 year old why he can't eat certain things. His poor little bottom has been so sore...we have had special cream for it. This virus runs for about 2 weeks...so hopefully we are nearing the end. He can't go to kindergym or Kindy or anything like that while he has this and is contagious...so we have been going on family outings...on Wed instead of kindergym we went to the Whispering Wall...a big dam that when you stand either side of it...when you talk you can hear the person clearly on the other end.
Please keep praying for fellow FA sufferers. Sweet Nicholas was coughing up some blood yesterday when I spoke with Donna...pray for him.
Well, I must be off....will update again soon.
Love Charisse
26th September 2006 Tuesday.
***UPDATE***
Isaac had his doctor's appoitnment on Monday and he is doing a lot better. He is improving! Praise the Lord! The antibiotics for his chest seem to have cleared up that problem wonderfully! His diarrhoea...well he still has it but it has decreased its amount to only 2 times a day and the awful smell has gone...which tells us this bug is being treated appropriately with the antibiotics he is still on. His bottom is not so red and he will let me clean it and put on cream without screaming. We don't have to go to hospital! YES! Isaac's eating has improved over the last 2 days and his energy has picked up...he was like a whirl wind today. The doctor has cleared him to go back to kindergym and child care on Friday which is good. He was starting to get bored! Now that he feels better...he has some energy to burn. This is all such a relief. Now we can all get more rest as well! Isaac is still a bit vulnerable but improving. The doctor has said that if the diarrhoea gets worse again...we will go back and he sees his paediatrician again real soon as well. He is still on lactose free diet and no dairy for a while....but hey...we can handle that at long as he feels better and is not so upset. 48 hours or more of antibiotics really makes a difference. I am praying that he continues to stay well now!
Love Charisse
************
Hello All,
what a challenging week! Isaac is still sick with diarrhoea...Day 18! The doctor has become a bit concerned. Not only has Isaac had this bug for ages but he also has managed to have a chest infection for a week...which he is now on antibiotics for. They also suspect a different bug for the bowels...except to test properly for it, the child needs to be in hospital. Because Isaacs has gone for so long...we are treating for it anyway...so he is on a second lot of antibiotics for his gut. The doctor said that if he doesn't show much improvement with his chest of bowel by Monday he may need a visit to the hospital...or at least think about where we go with treatment next! Isaac has been really sick and very uphappy!
On a good note...my tongue is almost completely healed up. The ENT appointment went really well on Wednesday and today it is almost all gone...my tongue feels a lot more normal and only stings every now and then.
We watched Steve Irwin's memorial on TV this week. Very emotional and very Australian.
I had my IVIG infusion yesterday and it went well. Although at one point the nurse decided to let it free flow and it made me feel sick and get a headache and a sore wrist! We told them to put it back in the machine to regulate the rate...I just can't handle it going that fast!
My infusion reaction has gotten heaps better since my doctor (old one) put me on prophalactic steroids the day before the infusion! I am only experiencing tiredness, a little pain and altered perception as opposed to all that pain I used to have.
I see my new doctor for the first time on the 6th October.
Today we had lunch with Alan's family...Isaac saw his great grandma...that was really nice.
Tomorrow is a wedding...an African wedding and it will be interesting.
Monday, Isaac goes back to the doctor.
My sister, Liesl, is now 33 weeks pregnant tomorrow! It is getting closer....it is very exciting. I can't wait to meet my new nephew or niece....and Isaac can't wait to meet his counsin!
Well, I am going to go. I think Isaac just got up from his sleep.
Love Charisse
--------------------------------------------------------------------------------
Friday, September 15, 2006 1:30 AM CDT
Hello All,
well the burn on my face only took a couple of days to go away. So that is good. However, my tongue became really painful. At the end of the week the stitches fell out on my tongue and I was in quite a lot of pain. I was having trouble eating and talking did become a problem. Then it started bleeding a bit more...so Alan and I took a picture of it and sent if via email to my ENT to ask if we needed to be worried about it and he called only a short time later and asked me to come in the next morning at 9am. I thought he may put in more stitches...but he decided that we would wait and see how it would heal a bit because it was SO raw....and SO sore...and it the last 2 days the pain has decreased quite dramatically....but it still seems really open. The ENT said that the tongue can act similar to where your tonsils are and when you get them out...it is raw and seems to take forever to heal and then..it suddenly heals up. Anyway, I have another appointment with the ENT this Wednesday to check if anything else needs to be done. FA healing time is increased of course...so I will make sure this tongue heals properly. The pathology on the spot they took out came back normal and clear...Praise the Lord!
Poor Isaac has been so unwell. We are on Day 9 of diarrhoea....he has the rotavirus...a nasty gastro bug that goes around young children and babies. And it tends to make them lactose intolerant for a short while even after the bug. So Isaac is currently on lactose free formula and soy milk. We have had to cut out dairy and that is what he likes mainly..it is hard to explain to an almost 4 year old why he can't eat certain things. His poor little bottom has been so sore...we have had special cream for it. This virus runs for about 2 weeks...so hopefully we are nearing the end. He can't go to kindergym or Kindy or anything like that while he has this and is contagious...so we have been going on family outings...on Wed instead of kindergym we went to the Whispering Wall...a big dam that when you stand either side of it...when you talk you can hear the person clearly on the other end.
Please keep praying for fellow FA sufferers. Sweet Nicholas was coughing up some blood yesterday when I spoke with Donna...pray for him.
Well, I must be off....will update again soon.
Love Charisse
Subscribe to:
Posts (Atom)