Hi All,
I am home. Came home this evening. Headaches are almost gone...much more manageable now. I will try and write more a bit later....the pain regime I am on is making me a little dizzy and I feel strange....so I am gonna lie down...could have stayed another night but I felt like I needed to be home.
MRI still being booked...and yes, they are thinking this is a big reaction to the IVIG I have 4 weekly...trying to work out how we can resolve this. Will write more when I can...and then share those funnies...just can't concentrate on this computer screen. Thanks for ALL your messages...from everyone..they are much appreciated and encouraging....until a little later when I feel a bit better.
Love Charisse
Showing posts with label Severe headaches. Show all posts
Showing posts with label Severe headaches. Show all posts
Tuesday, July 10, 2007
Monday, July 9, 2007
Hi from hospital
Greetings,
I have an IV in my right hand, hense I am unable to type.... so i am sitting in my bed like a queen dictating to my husband what he should write in my journal. (giggle giggle)
Last night was a horrible night. As soon as we arrived at the hospital, i just wanted pain relief. the pain was so overwhelming, all i could do was rock... and demand!!
I didn't have an IV in then, so the nurses brought a sub-cut butterfly (small temporary line (needle and line) and put it into my tummy and gave me some fentanyl, which DIDN'T releive my pain. I spent most of the evening in severe pain with Isaac marching around the hospital, talking at the top of his voice (or so it felt).
I tend to feel embarassed to tell the nurses how badly i'm in pain. Alan helped me to tell them and eventually they rang the doctor and up'd my dose of fentanyl and gave me other digesic. It was the fentanyl that helped me to control the pain. They also put an IV in, and I've had 2 litres of IV fluid.
I'm feeling more hydrated now, and have 1 litre of IV fluids to go. I'm able to eat and drink more and obviously feel a little bit better today.
The doctor has put me on a pain protocol, that we are trialling overnight and tomorrow. If this works, I get to go home tomorrow night.
The doctor is also booking me in for a MRI scan in the next couple of weeks to rule out any nasties. My last MRI in February was totally clear, so we have a baseline now.
they took bloods yesterday, and the results show all clear of infection. In fact I was surprised and pleased to see that my platelets have doubled since my last count (i prefer not to share the actual blood counts online - private)
That is all for tonight. I have more funnies to share but will share them when i can type, and am feeling better at home.
Love you all
Charisse
(and Alan the typist!!)
I have an IV in my right hand, hense I am unable to type.... so i am sitting in my bed like a queen dictating to my husband what he should write in my journal. (giggle giggle)
Last night was a horrible night. As soon as we arrived at the hospital, i just wanted pain relief. the pain was so overwhelming, all i could do was rock... and demand!!
I didn't have an IV in then, so the nurses brought a sub-cut butterfly (small temporary line (needle and line) and put it into my tummy and gave me some fentanyl, which DIDN'T releive my pain. I spent most of the evening in severe pain with Isaac marching around the hospital, talking at the top of his voice (or so it felt).
I tend to feel embarassed to tell the nurses how badly i'm in pain. Alan helped me to tell them and eventually they rang the doctor and up'd my dose of fentanyl and gave me other digesic. It was the fentanyl that helped me to control the pain. They also put an IV in, and I've had 2 litres of IV fluid.
I'm feeling more hydrated now, and have 1 litre of IV fluids to go. I'm able to eat and drink more and obviously feel a little bit better today.
The doctor has put me on a pain protocol, that we are trialling overnight and tomorrow. If this works, I get to go home tomorrow night.
The doctor is also booking me in for a MRI scan in the next couple of weeks to rule out any nasties. My last MRI in February was totally clear, so we have a baseline now.
they took bloods yesterday, and the results show all clear of infection. In fact I was surprised and pleased to see that my platelets have doubled since my last count (i prefer not to share the actual blood counts online - private)
That is all for tonight. I have more funnies to share but will share them when i can type, and am feeling better at home.
Love you all
Charisse
(and Alan the typist!!)
Saturday, July 7, 2007
Going to Hospital
Just writing a note to let you know that I am being admitted tonight for treatment of these severe headaches that I have been having with the IVIG..woke at 5am with it so sore, started vomiting...and the locum doctor came out and gave me injections for nausea and pain..but doesn't seem to have worked...I am not sleepy from it either...boy my body is sure trying to hold out. It is amazing I am here at the computer with how sore the eye site is and how the light affects me...so I am going to go and try and relax again....before Alan and I leave for the hosptial...my bed is booked...I think I may also be a bit dehydrated...so IV meds and IV to rehydrate and a rest without my little boy....we might be doing an MRI as well sometime because it has been so nasty...got to double check with FA that there is no "nasties" going on in the brain. I have a funny or two to share...but I don't have the energy or the capacity to sit here and write it...so until I get home.
Love Charisse
Love Charisse
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